The Olson ALS Foundation is committed to protecting the privacy of its users. Information gathered by us is used to monitor the effectiveness of our site, personalize your Internet experience, and respond to your questions and requests. The Olson ALS Foundation respects the privacy of every individual who uses Olson ALS Foundation-owned websites, mobile applications and other online products and services (collectively,”Site”). This notice applies to our information collection practices for this Site. Because your privacy is important to us, we provide you with notice and choices about the collection and use of your information. To make this notice easy to find, links are provided at the bottom of our homepage and on every page within our website.
We collect two types of information:
Standard Web server traffic pattern information.
Personal information. Personal information, including, but not limited to, name, address, age and telephone number.
Personal information may be needed for certain online activities:
Patient information: As an ALS patient, your information is confidential and will only be shared with Olson ALS Foundation affiliate entities with written permission from a patient or their designee. Under no circumstances will The Olson ALS Foundation provide information to outside entities, except where required by law and then only after providing notice to the patient and/or designee. The Olson ALS Foundation will, upon request of a patient or their designee or caretaker, serve as an intermediary between patients and outside entities where deemed appropriate.The Olson ALS Foundation may provide to government agencies and outside entities aggregate data on ALS including incidence and prevalence and number of patients served by The Olson ALS Foundation.
If you choose to donate to our organization, we maintain a record of your contribution. Requests: If you submit an online request for Olson ALS Foundation products such as free brochures, or submit a question through a “contact us” query, we may have to gather additional information from you to respond to your request. Such information will vary with the request but often includes name, shipping address, telephone number, and email address.
We limit the use of information provided to us on our Site to the following:
If you do not make a service request, donation, purchase, or otherwise identify yourself, we will have no personally identifiable information about you. We will only use aggregate information derived, in part, from your use of our site to improve our site and our service to you.
If you provide personal information, we may enter your name into our constituent database and contact you in order to: 1. Complete voluntary surveys seeking feedback for quality and service improvement purposes.
Supply you with information including Olson ALS Foundation related news, campaigns, events and services.
Request voluntary time or monetary contributions to The Olson ALS Foundation.
We collect the email addresses of those who communicate with us by email. Inquiries may be forwarded to the appropriate Olson ALS Foundation department for response and may be entered into our constituent database. If your name is entered into the database, we may contact you (see above).
Your information is privileged and confidential and will not be shared or released to any organization or business entity other than those affiliated with or working in conjunction with The Olson ALS Foundation as follows:
We occasionally hire other companies to provide limited services on our behalf. We will only provide those companies the information they need to deliver the service and prohibit them from using that information for any other purpose.
We respect your privacy and allow you to restrict internal and external sharing of your personal information. We recognize that you may wish to limit the ways in which we contact you and we offer the following options:
Do not contact me by telephone.
Do not contact me by postal mail.
Do not contact me by email.
Do not share my contact information with other non-profit organizations.
Do not contact me with fundraising requests supporting The Olson ALS Foundation.
Do not contact me.
Upon request, we will provide you with the information we maintain about you so that you may request corrections. This information will be sent via postal mail, which we believe is the most secure method of communication. Please contact us by email at firstname.lastname@example.org or in writing at:
Security and Privacy Requests
The Olson ALS Foundation
433 Council Drive
Fort Wayne, IN 46825
To protect your privacy and security, we will take reasonable steps to verify your identity before providing information or making corrections.
The security of your personal information is very important to us and we are committed to protecting the information we collect.
Our privacy policies apply only to your use of an Olson ALS Foundation Site. Our website contains links to other sites, including sites that have a special relationship with us. We do not disclose personably identifiable information to those operating linked sites and we are not responsible for their privacy practices. Links to other sites do not imply an endorsement of the materials or policies on those websites. You should read the privacy policies of each site you visit to determine what information that site may be collecting about you.